Digital Health Solutions for Rare Neurological Disorders
Managing rare neurological disorders requires tracking complex motor and cognitive symptoms, supporting immense caregiver burden, and capturing subtle changes between infrequent specialist visits.
Request a DemoThe Challenge
Addressing the Unique Challenges in Rare Neurology
Neurological rare diseases present some of the most complex challenges in healthcare. Progressive conditions like Huntington's disease, ALS, and muscular dystrophy require continuous monitoring of motor function, cognitive decline, and quality of life—often with limited clinical touchpoints and significant caregiver involvement.
Our Solution
Targeted Platform Capabilities for Neurology
Track Motor & Cognitive Symptoms
Use our SaMD app for daily symptom diaries and validated ePROs like the UHDRS (Unified Huntington's Disease Rating Scale). Capture tremors, gait changes, speech difficulties, and cognitive decline with precision.
Support for Caregivers
Provide essential tools for family members with our dedicated Caregiver Portals. Enable caregivers to log observations, manage medications, access educational resources, and communicate with the care team.
Enable Remote Monitoring (RTM)
Allow neurologists to monitor patient-reported data trends between appointments. Set up alerts for concerning changes in motor function, falls, or medication adherence to enable proactive interventions.
Generate Longitudinal RWE
Collect continuous data on disease progression, treatment response, and quality of life outcomes. Demonstrate long-term value to payers and support post-market surveillance requirements.
Example in Action
Real-World Impact
ALS Therapy Launch
A biopharma partner launching an ALS therapy used Mahalo to track patient respiratory function via ePROs, providing invaluable real-world data for their Phase IV study. The platform enabled continuous monitoring of forced vital capacity (FVC) trends, medication adherence, and quality of life metrics between clinic visits.
Discuss Your Neurology Program
Schedule a specialized demo to see how our platform can be configured for your specific neurological rare disease therapy.
Request a Specialized Demo