5 Proven Strategies to Boost Patient Engagement in Rare Disease Programs
Learn how leading biopharma companies are achieving 90%+ engagement rates through personalized digital experiences, caregiver support, and meaningful patient-reported outcomes.
Insights & Resources
Expert perspectives on digital health innovation, patient engagement strategies, and the future of rare disease care.
Latest Insights
Stay informed with the latest trends, best practices, and innovations in rare disease digital health.
Real-World Evidence
The Complete Guide to Generating RWE for Rare Disease Therapies
Discover how to design, implement, and leverage real-world evidence programs that meet regulatory standards and demonstrate therapy value to payers.
Regulatory & Compliance
Navigating Regulatory Compliance for Digital Health in Biopharma
A comprehensive overview of HIPAA, GDPR, GxP, and 21 CFR Part 11 requirements for digital health platforms supporting rare disease therapies.
Innovation
How AI is Transforming Patient Support in Rare Disease
Explore the emerging role of artificial intelligence in personalizing patient experiences, predicting adverse events, and optimizing treatment adherence.
Patient Experience
Mapping the Rare Disease Patient Journey for Better Outcomes
Learn how to identify critical touchpoints, pain points, and opportunities for digital intervention throughout the patient journey.
Caregiver Support
Supporting Caregivers: The Unsung Heroes of Rare Disease Care
Understand the unique challenges caregivers face and how digital tools can provide essential support, education, and respite.
Clinical Trials
Accelerating Rare Disease Trial Recruitment with Digital Tools
Discover proven strategies for identifying, engaging, and enrolling rare disease patients in clinical trials using digital platforms.